This is a post I hoped I would never have to do but unfortunately our hopes and dreams were shattered on Monday when Evie passed away. We are so grateful to have had 4 days with our beautiful little girl, we only wish it could have been much longer. I know Chris has kept the blog updated but I felt I wanted to post one last time to say thanks to everyone for all your support, comments, calls and texts over the last few months, they really helped us through.
Phillip and I are looking forward to seeing friends and family again, we appreciate everyone giving us some space over the past few days.
Evie will be coming home next Wednesday and we are planning a service to say goodbye to our little girl on Friday 21st. We are not sure of any arrangments as yet but please contact either Phillip or I or any of our families as we should know within the next few days.
Kerri and Phillip xoxoxoxo
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Our baby has been diagnosed with a severe right-sided congenital diaphragmatic hernia (CDH). We were given a very poor prognosis and decided to give the baby the best chance of survival by having Fetal Surgery.
Reasons for our Blog
We have just been given the news that the balloon is working and our baby now has increased chance of survival. At this point we thought it might be a good idea to do a blog to help keep our friends and famiy up to date as we know we are not always in the right frame of mind to speak to people and we thought this may be a good idea.
We also hope it will help other parents who are going through the same thing as reading other blogs has helped us so much. I appreciate some of the information is quite technical but this is for the other parents as I know I found this information invaluable in other blogs.
I have written the posts as if they were written at the time as I found this easier to do. Obviously this only applies to posts written before today.
Hopefully you find it easy enough to understand.
Kerri and Phillip xoxo
We also hope it will help other parents who are going through the same thing as reading other blogs has helped us so much. I appreciate some of the information is quite technical but this is for the other parents as I know I found this information invaluable in other blogs.
I have written the posts as if they were written at the time as I found this easier to do. Obviously this only applies to posts written before today.
Hopefully you find it easy enough to understand.
Kerri and Phillip xoxo
thinking of you.... your wee angel will be watching over you in the days and weeks that are ahead majella xx
ReplyDeleteI've been thinking of you and pray that peace will come sooner than later. Sending loving thoughts and prayers your way. Chanda
ReplyDeleteSending you prayers for peace and strength over the next few days, weeks and months ahead without your little girl.
ReplyDeleteGod Bless,
Sheryl
Just wanted y'all to know that your family is always in our thoughts and prayers.
ReplyDeleteKerri and Phillip- I made you something. See www.skybabies.blogspot.com
ReplyDeleteOh No! I never followed your blog, i guess i never came accross it. I so wish i would have. I just read a comment from your family on my blog so i came over here and read Evie's story. It breaks my heart....I am soooooo sorry for your loss. I lost Jackson Aug. 8th. He passed 10 days after my c-section, I couldn't imagine only 4 days later. I know just 4 days after i had him i was still not walking good at all and in alot of pain, by the 7th day I felt so much better. So for you to have to try and get things done and have just gone thru that is amazing...I will pray for you and your family. I know we're feeling the same pain right now and it's still so new to the all of us.....lots of love candice
ReplyDelete